About the Foundation
Krishnan Family Foundation Mission
Our mission is to raise global awareness of CMMRD in the medical community, to encourage and support the medical and scientific community’s research in finding effective treatments, and to provide information and direct support services to families affected by CMMRD.
Our primary focus areas include:
- Education
- Awareness
- Public policy and advocacy
- Research and science
- Collaboration
Vision.
Our vision is to ensure all families affected by CMMRD have equitable access to care, treatment, research, and improved quality of life.
Values.
We are guided by ethics, trust, transparency, respect, and compassion. We are committed to providing accessible information and meaningful support to families and stakeholders.
Hello!
We Are The Krishnans
The Krishnan Family Foundation was created from a deeply personal journey with CMMRD. After both of their children were diagnosed, the Krishnan family turned their experience into a mission to support others facing the same challenges.
Listen to Our Story
Projects for 2023 - 2025 will Focus on the Following Areas
Education
The foundation will support the education needs identified by the patient/family community in addition to supporting the educational needs of other stakeholders (including but not limited to industry, community services providers, HCP’s, etc.).
Awareness
There is a significant need for increased awareness for genetic testing and cancer predisposition. Although CMMRD affects patients worldwide, there is a specific need in underserved regions such as the Middle East, South Asia, and First Nation communities where factors like geographical isolation and marriage between closely related individuals increases the likelihood of a CMMRD diagnosis.
Public Policy & Advocacy
CMMRD is an ultra rare disease. Goal of our foundation is to support public policy and advocacy efforts with larger organizations such as Everylife Foundation for Rare Diseases and others.
Research & Science
The foundation will be focusing on the following areas: Supporting the International Replication Repair Deficiency Consortium & Helping to create a registry.
Collaboration
The Foundation believes strongly that our work individually and together with other predisposition syndrome communities/groups will accelerate our ability to meet and achieve our vision and mission. We are proud to be associated with the Pediatric Cancer Predisposition Coalition with whom we hope to grow our partnership to accelerate treatments and cures for our communities at large.
