Family Support Meeting

Join us for an informal gathering to meet other families and people with CMMRD. Date: April 17th Time: 8pm ET

Register in advance for this meeting:

After registering, you will receive a confirmation email containing information about joining the meeting.

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MENA Rare Disease Conference

Rare Disease Conference

MENA Congress for Rare Diseases in partnership with Burjeel Medical City is taking place in Beach Rotana, Abu Dhabi, United Arab Emirates from 16 to 19 May 2024.

Parvathy Krishnan, CMMRD Parent will be speaking on Day 3, Saturday. 

Register here:

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