Events
Family Support Meeting
Join us for an informal gathering to meet other families and people with CMMRD. Date: April 17th Time: 8pm ET
Register in advance for this meeting:
https://us06web.zoom.us/meeting/register/tZ0tdeqhrTgsE9P74hlEu0kwa_0129kGzI0B
After registering, you will receive a confirmation email containing information about joining the meeting.
MENA Rare Disease Conference
Rare Disease Conference
MENA Congress for Rare Diseases in partnership with Burjeel Medical City is taking place in Beach Rotana, Abu Dhabi, United Arab Emirates from 16 to 19 May 2024.
Parvathy Krishnan, CMMRD Parent will be speaking on Day 3, Saturday.
Register here:
